Walk for Lupus Now 2012-Miami - Camaro5 Chevy Camaro Forum / Camaro ZL1, SS and V6 Forums

Hec_45th · 09-03-2012, 08:45 PM

Hello everyone,

On September 15 there will be a Walk for Lupus in Parrot Jungle to help raise awareness and money for research to find a cure for Lupus. I have a Family member that suffers from the disease and have witnessed what it can do. Thank God he is ok but the disease is still there. The disease can take a toll
and has the ability to kill those with it. Below is the Link of the Miami chapter The entrance to Parrot Jungle is free if you are part of the Walk for Lupus.

http://www.kintera.org/faf/home/defa...D3EE117EBFD4D2

http://www.kintera.org/faf/home/defa...ievent=1009992

http://www.facebook.com/events/158223214301942/
Thank You All

For those of you that don't know what the disease is here is some info:
__________________________________________________ _______________
Lupus is one of many disorders of the immune system known as autoimmune diseases. In autoimmune diseases, the immune system turns against parts of the body it is designed to protect. This leads to inflammation and damage to various body tissues. Lupus can affect many parts of the body, including the joints, skin, kidneys, heart, lungs, blood vessels, and brain. Although people with the disease may have many different symptoms, some of the most common ones include extreme fatigue, painful or swollen joints (arthritis), unexplained fever, skin rashes, and kidney problems.

At present, there is no cure for lupus. However, lupus can be effectively treated with drugs, and most people with the disease can lead active, healthy lives. Lupus is characterized by periods of illness, called flares, and periods of wellness, or remission. Understanding how to prevent flares and how to treat them when they do occur helps people with lupus maintain better health. Intense research is underway, and scientists funded by the NIH are continuing to make great strides in understanding the disease, which may ultimately lead to a cure.

Two of the major questions researchers are studying are who gets lupus and why. We know that many more women than men have lupus. Lupus is two to three times more common in African American women than in Caucasian women and is also more common in women of Hispanic, Asian, and Native American descent. African American and Hispanic women are also more likely to have active disease and serious organ system involvement. In addition, lupus can run in families, but the risk that a child or a brother or sister of a patient will also have lupus is still quite low. It is difficult to estimate how many people in the United States have the disease, because its symptoms vary widely and its onset is often hard to pinpoint.

There are several kinds of lupus:

Systemic lupus erythematosus (SLE) is the form of the disease that most people are referring to when they say “lupus.” The word “systemic” means the disease can affect many parts of the body. The symptoms of SLE may be mild or serious. Although SLE usually first affects people between the ages of 15 and 45 years, it can occur in childhood or later in life as well. This booklet focuses on SLE.
Discoid lupus erythematosus is a chronic skin disorder in which a red, raised rash appears on the face, scalp, or elsewhere. The raised areas may become thick and scaly and may cause scarring. The rash may last for days or years and may recur. A small percentage of people with discoid lupus have or develop SLE later.
Subacute cutaneous lupus erythematosus refers to skin lesions that appear on parts of the body exposed to sun. The lesions do not cause scarring.
Drug-induced lupus is a form of lupus caused by medications. Many different drugs can cause drug-induced lupus. They include some antiseizure medications, high blood pressure medications, antibiotics and antifungals, thyroid medications, and oral contraceptive pills. Symptoms are similar to those of SLE (arthritis, rash, fever, and chest pain), and they typically go away completely when the drug is stopped. The kidneys and brain are rarely involved.
Neonatal lupus is a rare disease that can occur in newborn babies of women with SLE, Sjögren’s syndrome, or no disease at all. Scientists suspect that neonatal lupus is caused in part by autoantibodies in the mother’s blood called anti-Ro (SSA) and anti-La (SSB). Autoantibodies (“auto” means self) are blood proteins that act against the body’s own parts. At birth, the babies have a skin rash, liver problems, and low blood counts. These symptoms gradually go away over several months. In rare instances, babies with neonatal lupus may have congenital heart block, a serious heart problem in which the formation of fibrous tissue in the baby’s heart interferes with the electrical impulses that affect heart rhythm. Neonatal lupus is rare, and most infants of mothers with SLE are entirely healthy. All women who are pregnant and known to have anti-Ro (SSA) or anti-La (SSB) antibodies should be monitored by echocardiograms (a test that monitors the heart and surrounding blood vessels) during the 16th and 30th weeks of pregnancy. It is important for women with SLE or other related autoimmune disorders to be under a doctor’s care during pregnancy. Doctors can now identify mothers at highest risk for complications, allowing for prompt treatment of the infant at or before birth. SLE can also flare during pregnancy, and prompt treatment can keep the mother healthier longer

superchris · 09-03-2012, 11:38 PM

i'm down!

Hec_45th · 09-04-2012, 05:59 AM

Quote:

Originally Posted by RedDragonSS

Hector,
I am glad you got this information up as I am sure you will get a great response from the entire camaro community... I will be adding the information to our website as well as spreading the word to all of our Tri-County brothers and sisters..
I will be checking my work schedule tomorrow, I am pretty positive I have the day off so me and my family will be there..
See you soon,
Adrian

Thanks Adrian !!!

Hec_45th · 09-04-2012, 05:18 PM

Quote:

Originally Posted by superchris

i'm down!

That's great thanks

daveagogo1 · 09-05-2012, 11:53 AM

I will have to let you know. Doesn't look good rit now but, if i can i will join in.

Hec_45th · 09-05-2012, 01:29 PM

Quote:

Originally Posted by RedDragonSS

Hector let's try and get a flyer together for this weekend at the patriot run I'm sure we can get a lot of guys to come out from there as well...

Sounds good great idea!

Hec_45th · 09-06-2012, 09:09 PM

Help and Show some support in the fight against Lupus!

Hec_45th · 09-10-2012, 10:33 PM

Quote:

Originally Posted by RedDragonSS

Saturday, September 15, 2012
Jungle Island
1111 Parrot Jungle Trail
Miami, FL 33132

Check in begins at 7:00 am
Walk begins at 8:30 am

Lupus Foundation of America
Southeast Florida Chapter
(561)279-8606
walk@lupusfl.org

Thanks Adrian!!! You're going right

09-03-2012, 08:45 PM	#1
Hec_45th Drives: 2012 Camaro 45th Anniversary 2LT RS Join Date: May 2012 Location: Miami, Fl Posts: 151 View My Garage	Walk for Lupus Now 2012-Miami Hello everyone, On September 15 there will be a Walk for Lupus in Parrot Jungle to help raise awareness and money for research to find a cure for Lupus. I have a Family member that suffers from the disease and have witnessed what it can do. Thank God he is ok but the disease is still there. The disease can take a toll and has the ability to kill those with it. Below is the Link of the Miami chapter The entrance to Parrot Jungle is free if you are part of the Walk for Lupus. http://www.kintera.org/faf/home/defa...D3EE117EBFD4D2 http://www.kintera.org/faf/home/defa...ievent=1009992 http://www.facebook.com/events/158223214301942/ Thank You All For those of you that don't know what the disease is here is some info: __________________________________________________ _______________ Lupus is one of many disorders of the immune system known as autoimmune diseases. In autoimmune diseases, the immune system turns against parts of the body it is designed to protect. This leads to inflammation and damage to various body tissues. Lupus can affect many parts of the body, including the joints, skin, kidneys, heart, lungs, blood vessels, and brain. Although people with the disease may have many different symptoms, some of the most common ones include extreme fatigue, painful or swollen joints (arthritis), unexplained fever, skin rashes, and kidney problems. At present, there is no cure for lupus. However, lupus can be effectively treated with drugs, and most people with the disease can lead active, healthy lives. Lupus is characterized by periods of illness, called flares, and periods of wellness, or remission. Understanding how to prevent flares and how to treat them when they do occur helps people with lupus maintain better health. Intense research is underway, and scientists funded by the NIH are continuing to make great strides in understanding the disease, which may ultimately lead to a cure. Two of the major questions researchers are studying are who gets lupus and why. We know that many more women than men have lupus. Lupus is two to three times more common in African American women than in Caucasian women and is also more common in women of Hispanic, Asian, and Native American descent. African American and Hispanic women are also more likely to have active disease and serious organ system involvement. In addition, lupus can run in families, but the risk that a child or a brother or sister of a patient will also have lupus is still quite low. It is difficult to estimate how many people in the United States have the disease, because its symptoms vary widely and its onset is often hard to pinpoint. There are several kinds of lupus: Systemic lupus erythematosus (SLE) is the form of the disease that most people are referring to when they say “lupus.” The word “systemic” means the disease can affect many parts of the body. The symptoms of SLE may be mild or serious. Although SLE usually first affects people between the ages of 15 and 45 years, it can occur in childhood or later in life as well. This booklet focuses on SLE. Discoid lupus erythematosus is a chronic skin disorder in which a red, raised rash appears on the face, scalp, or elsewhere. The raised areas may become thick and scaly and may cause scarring. The rash may last for days or years and may recur. A small percentage of people with discoid lupus have or develop SLE later. Subacute cutaneous lupus erythematosus refers to skin lesions that appear on parts of the body exposed to sun. The lesions do not cause scarring. Drug-induced lupus is a form of lupus caused by medications. Many different drugs can cause drug-induced lupus. They include some antiseizure medications, high blood pressure medications, antibiotics and antifungals, thyroid medications, and oral contraceptive pills. Symptoms are similar to those of SLE (arthritis, rash, fever, and chest pain), and they typically go away completely when the drug is stopped. The kidneys and brain are rarely involved. Neonatal lupus is a rare disease that can occur in newborn babies of women with SLE, Sjögren’s syndrome, or no disease at all. Scientists suspect that neonatal lupus is caused in part by autoantibodies in the mother’s blood called anti-Ro (SSA) and anti-La (SSB). Autoantibodies (“auto” means self) are blood proteins that act against the body’s own parts. At birth, the babies have a skin rash, liver problems, and low blood counts. These symptoms gradually go away over several months. In rare instances, babies with neonatal lupus may have congenital heart block, a serious heart problem in which the formation of fibrous tissue in the baby’s heart interferes with the electrical impulses that affect heart rhythm. Neonatal lupus is rare, and most infants of mothers with SLE are entirely healthy. All women who are pregnant and known to have anti-Ro (SSA) or anti-La (SSB) antibodies should be monitored by echocardiograms (a test that monitors the heart and surrounding blood vessels) during the 16th and 30th weeks of pregnancy. It is important for women with SLE or other related autoimmune disorders to be under a doctor’s care during pregnancy. Doctors can now identify mothers at highest risk for complications, allowing for prompt treatment of the infant at or before birth. SLE can also flare during pregnancy, and prompt treatment can keep the mother healthier longer __________________

09-03-2012, 11:38 PM	#2
superchris TRI-COUNTY CAMARO'S 3CC5 Drives: 2010 Red 2SS/RS M6 Join Date: Jun 2011 Location: Miami,Fl Posts: 171	i'm down! __________________

09-06-2012, 09:09 PM	#7
Hec_45th Drives: 2012 Camaro 45th Anniversary 2LT RS Join Date: May 2012 Location: Miami, Fl Posts: 151 View My Garage	Help and Show some support in the fight against Lupus! __________________